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Tuesday, July 10, 2012

NICU day #9

It's hard to believe that Baby K was a week old yesterday. Time is flying! Which is a good thing, because I want her to come home as soon as possible.

She made great progress over the weekend, so much so that the neonatologist lowered her morphine dosage for the first time yesterday. Since then, she's been doing even better - eating more from the bottle and generally being more alert. We anticipate that she'll lower her medication a little more tomorrow. The process is slow but crucial for Baby K's recovery. A few of you have asked if the morphine meant that T was on illegal drugs during her pregnancy. The answer to this is no, but please understand that we are not disclosing the details of T or Baby K's health for privacy purposes. You know that phrase, "It isn't my story to tell"? Well, it isn't my story to tell.

As for us? Well, I'd be doing better if everything else surrounding this wasn't so stressful: being 90 minutes away from home, having issues with my insurance and adding the baby, having issues getting my FMLA approved, and (today's latest) learning that Joey's company will not give us our adoption reimbursement because we are missing ONE piece of paperwork that we won't receive until after finalization, which is sometime in November - even though their form says reimbursement occurs at placement. It never does get easier, that's for sure.

Right now, I'm doing my best to focus on Baby K and trying not to let that stress interfere with the fact that we need to get her better. I have my moments where I break down, and then I try to remind myself: one thing at a time. That's all my brain can handle at this point.

Please continue to keep our little girl in your thoughts.

21 comments:

lparsons15 said...

You guys are in my thoughts constantly, So happy Baby K is improving!

KC said...

Thinking of baby K and I am happy to here she is doing so well. She will be home before you know it!

M said...

Lots of T&Ps to your family! <3

Glass Case of Emotion said...

I think the employer reimbursement issue is pretty standard. We also haven't recieved our reimbursement yet, we need to wait until finalization too. Frustrating in the meantime! We also had to fight about getting V added to our insurance at first too. People are so clueless about adoption. Hope things get smoother for you soon.

Stay healthy, K!

Hapa Hopes said...

So glad to hear she is getting better and better. Can't wait to hear that she's on her way home. Hang in there, Mamma. You can do it!

Anonymous said...

You don't usually get adoption reimbursement until after you finalize your adoption, so that makes sense. While, it also sucks!

It Is What It Is said...

So glad to hear that all things are coming along.

I do hope that in a future post, you'll share the level of openness (or not) that you anticipate having with T. The reality of post placement is so important to those who are going through the adoption process.

AnotherDreamer said...

Keeping you all in my thoughts.

How frustrating about Joey's work and the paperwork... on top of what you're already facing with the nicu stay, that's really rough.

Just the Tip said...

yay for her first titer down!

A co-workers daughter was on morphine during both of her pregnancies. One was born in the states and one in Germany (where her H was stationed). I know they both did things very differently, and I think they added another drug but I *think* they were both able to go home well before the 6 week mark.

She had a really bad accident in gymnastics when she was an older teenager and messed something up hardcore. I think she had rods in her back and stuff, IDK all I know is she's fairly young and has A LOT of pain.

Hugs! FMLA & Insurance, SUCK!

manymanymoons said...

Thinking of you all the time. I know the red tape never ends, but you will get through it and as you know, it will be so worth it. You are a mom!!

Becky said...

So hard to have a baby in the NICU, and then to throw all this other stress on top of it :( Yay for baby K getting stronger!

Alex said...

One week old! Woohoo! Glad to hear Baby K is improving, and getting closer to the date when you can finally bring her home! I hope you guys can figure out everything with the paperwork - that part sounds awful...

Detour said...

That's great that they've been able to lower her morphine dosage. The paperwork stress sounds horrendous. You're in my thoughts!

Rebecca said...

I sympathize so much with what you're going through! Being 90 miles away from home and isolated in the hospital with your husband back home is really tough. And, we dealt with all sorts of insurance problems, too, with the twins (we're still trying to convince them that they are two separate people...) I hope that and the reimbursements all get figured out soon.

But, I will say this -- people told me that it would all be a "blip" eventually when it felt like the whole world while it was happening. After 7 weeks in the NICU and now just 4 weeks out, I can already say that the time in the NICU is starting to feel like a blip. I just kind of feel like I "lost" 7 weeks -- I'll never really forget it but it doesn't feel like such a big thing anymore now that I can focus on being a "real" parent at home.

There were a few kids weaning off morphine while we were in the NICU and the one thing that made ALL the difference for them was when their parents were there which, unfortunately for some of them, wasn't that often. But, your little K is SO lucky to have you there with her ALL the time. She'll do wonderfully.

someday-soon said...

Sorry your dealing with administrative frustrations while trying to be there for K =( So happy she is improving so much!!! Way to go little K, keep it going =)

Dawn said...

Thinking of you. Taking it one day and one thing at a time is the only thing you can do!

Emily said...

I'm sorry you're having to deal with all these extra issues when you're trying to bond with and take care of Baby K. I hope everything is resolved soon, and that your daughter continues to improve. It sounds as though she's doing well so far. You're all in my thoughts.

Stephanie said...

So glad to hear that you're sweet baby K is doing better! I'm sure it will all work out in the end, but for now, you should just lavish your little girl with love.

Arlyne said...

I'm sorry that things have been so difficult with the insurance & reimbursement. I know it just adds to the stress you already have. :( So thrilled to hear that K is doing so much better!! Hang in there! You are doing fantastic as always & K is so incredibly lucky!! Sending lots of love & (((HUGS))) to all of you! xoxoxo

Trisha said...

Sorry I haven't had a chance to come by and tell you Congrats! I'm so happy for you! Praying for your sweet little one and for you.

Adele said...

Thinking of you. And hoping that Baby K comes home very soon.