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Thank you for all of your support over the years! xo

Friday, June 10, 2011

shedding some light

At my last check up, RE #3 asked if I would be okay going into a lab here at home for some standard blood work. He just wanted to "rule things out" he said, specifically any type of blood disorders. He also wanted to do another check on my TSH and Prolactin levels, as it's been a while since they've been tested.

I went into the lab on Saturday morning thinking that I would get the results at my next appointment on the 21st. I did not expect to receive a phone call yesterday from my nurse.

"Everything came back normal, except for your prolactin levels. They are high. We need you to have them retested first thing in the morning. And this time we need you to fast."

Okay. No big deal. (Except for the whole waking-up-at-the-ass-crack-of-dawn-and-not-getting-any-coffee thing.) But then I start realizing what this means.

If my prolactin levels are high, I don't ovulate. So does this mean that this entire time my body's dysfunction has been hanging on the abundance of this ONE hormone? If so, there are a few doctors who have some 'splaining to do. Such as the last one (a gynecologist) who told me that blood work wouldn't tell him anything, which is why he didn't want to run anything. Or the last RE who didn't take blood work AT ALL.

I'm trying not to jump to conclusions. I want to give this second test the benefit of the doubt. It could come back completely normal. Or it couldn't. Which means we might have a name for what the hell the problem is. And a medication to fix it.

It's the first time in my life that I hope to some higher being that my blood work comes back abnormal.

25 comments:

AnotherDreamer said...

I can't believe some of your doctors didn't bother running blood work :( Well, I believe it... my first RE didn't bother running any for me. But it's still CRAP! I hope you get some answers this time.

Lesley said...

Katie,

I typically don't post comments, but I've followed your blog for several months. Hang in there with all the blood tests and anxiety-filled waiting for results. I also have elevated prolactin, which has been controlled with medication (cabergoline)for the last three years. I can't say that it has solved all my problems because we're 4 1/2 years down the TTC road with nothing to show for it, but that's another story. Everyone's situation is different, but I know you've had a rough road lately and just wanted to let you know that the solution to this particular issue may be simpler than some of the things you're dealing with. Wishing you the best.

someday-soon said...

I'm keeping my fingers crossed for abnormal results...wait, that doesn't sound right ;-) I know what a relief an explanation would be at this point. And if it would be something relativly easy to correct even better. GL!

Brave IVF Girl said...

I understand the feeling - I asked my last RE about DQ Alpha testing and he said it wasn't necessary since I'd gotten pregnant. Of course I *didn't* get pregnant with my last IVF, and this might explain it.

I'm glad this doctor is being thorough and hope you get some answers that help find you a solution!

*hugs*

erika said...

Prolactin is one major screwer-upper! it's a super easy fix though, and you may only need it while TTC. Gosh! I am sooo hoping RE#3 will be the one delivering you those long-deserved answers!

Rebecca said...

My RE has yet to do bloodwork except for the diagnosis of my ovarian cyst to make sure its not cancerous. Odd.
Now I know to ask at my next ultrasound which is Monday.

A said...

infertility is messed up that way- we are somewhat happy when something turns up wrong/out of range that we can fix to maybe have a baby... it is really interesting/frustrating/astounding how doctors are so different: my RE never tested my blood FSH level! praying for you as you wait to see what the bloodwork will tell you, and hoping with you that this RE can find something to fix so your baby can come home soon!!

"His Perfect Timing" said...

I have high prolactin also, and am taking Bromacriptine. I don't have ovulation problems (that I know of!), but wanted to share in case it helps. :-)

Sherrie Elise said...

i don't typically comment, but I wanted to share my story with you too. When I was 16 I was diagnosed with a pituitary microadenoma (benign thankfully) that caused me a ridiculous prolactin level (10x higher than normal). I never ovulated because of this. I was on bromocryptine for 8 years (which always killed my stomach and took 3 pills a day) and then got switched to cabergoline 3 years ago (two pills twice a day - much easier med). It helped to bring my levels to almost normal. Once I reached closer to normal levels, I was able to go through IUI attempts with menopur, which after 3 attempts finally worked.

I hope the normalizing your proloactin levels can help bring some balance to your life. Good luck with your additional tests!

Browniris said...

Good luck...I hope this gives you some well-deserved answers!

Jennifer said...

I am shocked the Dr's didn't run this..I hope that finding out about this now and fixing it is exactly what you need.

suchagoodegg said...

IT makes zero sense to me that no RE has done this bloodwork on you until this guy. UNREAL! I'm frustrated for you about that, but so so so hopeful that this prolactin thing turns out to be the answer behind all of the crazy-ness your poor bod has endured the last few years. Sending you hugs and lots of love for a number that means you have something to FIX. xoxo

Arlyne said...

Oh Katie I hope that you finally get some answers! It's been such a long & frustrating road for you guys that finally having an answer would be wonderful for you!! Xoxo

Honeybee said...

I hope you are able to get some answers with this bloodwork... Sure is weird to be almost thankful when something is unusual though, right? haha... Thank goodness they are finally doing bloodwork for you!

Rebecca said...

My first RE never did any bloodwork either unless I forced her to. I couldn't understand it. What is wrong with these people?

I hope so much that the results help you find an answer!

foxy said...

I am so glad that you found this new Dr Katie. You deserve some gold standard care, and it sounds like this guy is finally taking your situation seriously and is committed to figuring out what the heck is going on.

Slackie O. said...

Oh, oh, oh! So glad you finally got a Dr. that is actually LOOKING for the problem. So proud of you for continuing to advocate for yourself in the face of the setbacks you've had. So hoping this is the answer you've been looking for!

Kelly said...

I'm really really hoping that they come back high again!

Lollipop Goldstein said...

I don't think I've ever wished for an abnormal blood result for anyone, but this time, I think I will. Especially because it would give you a reason, something to work on to fix. Answers.

Just sending good thoughts.

S.I.F. said...

It is so incredibly frustrating to me how locked into their own little bubbles some doctors get - rendering them incapable of listening to us or seeing past their own noses!

It drives me crazy that no other doctor would have looked at this, but I'm hoping that maybe (just maybe) this could be the start of some answers for you at least?

Three Cats and a Baby said...

I'm looking forward to hearing your blood test results!

Damita said...

fingers crossed that they can fix this, better to have something to fix then nothing at all.

tushkan122 said...

Hi Katie,
just wanted to let you know I was having a hard time getting pregnant, then my hormones got tested and the prolactin levels were high. Do you experience pain in your breasts close to your period? That is one of the symptoms I was told. I was put on medication and several months later was pregnant. Keeping my fingers crossed you have finally found the answer!

Danielle said...

Come on, abnormal bloodwork! I hope you get some hopeful news from this - you deserve some. xoxo

Anonymous said...

I just followed a link this morning and ran onto your blog. I had this exact same problem-- they did blood tests and my prolactin was high so I had to go back on another morning, fasting. My prolactin still came back high. The Dr. told me that the high levels can be caused by a small tumor on the pit. gland and that an MRI would need to be done to rule that out. She didn't recommend the MRI because other tests made it appear that I was ovulating and the tumor does not need to be treated unless it absolutely is affecting fertility (my husband was already the main cause for our infertility). I should have just gotten an MRI to put my mind at ease but we were just about to do IVF so I chose not to have the MRI. So, I just wanted to pass that on in case this helps at all....