Tuesday, June 21, 2011

houston, we have a diagnosis

This morning, I had another appointment with RE#3. I was less interested in the ultrasound than I was with getting the results of my second blood draw to test my prolactin levels. But everything has to be suspenseful, so we did the ultrasound first.

All is quiet on the ovary front - exactly where it should be. That's two straight, normal scans. This is wonderful news, and a rare occurrence for me. It means that the birth control I'm currently on is working to keep my follicles from growing too large.

After the ultrasound, we received the blood work results from test 2: higher. In fact, my levels almost doubled with the second test. You'll remember from my previous post that this is what I wanted. This would be a definitive diagnosis for why this is happening.

So . . . now what?

I have another blood draw on Friday and an MRI on Monday. We need to rule out a tumor on my pituitary gland, called a prolactinoma. But tumor or no tumor, RE#3 will most likely start me on bromocriptine and eventually take me off of the birth control once my hormone levels have reached an acceptable level to where my ovaries will not produce cysts.

As weird as all of this sounds, this is good news. Yes, that's right. I think it's good news, despite the fact that I may have a tumor in my brain. This is what infertility does to you. When you've been in pain for a long time, when you've exhausted your resources, when you've spent thousands of dollars trying to figure out what the hell your body is doing wrong, an answer is good news. Having a doctor who legitimately cares is good news. Being told that your pain is curable is good news. Being told you could possibly live your life off hormones is good news.

And this is what I'm happy about tonight.

39 comments:

Miss Megan said...

Congrats on a diagnosis! I remember being ecstatic when I was diagnosed with stage IV endo - non IF people thought I was nuts - but I was so pleased! Congrats on FINALLY finding out what is wrong! Now lets hope that it's an easy fix for you!! FX!

Rebecca said...

Oh, Hun, I think IFers completely understand that relief. I'm so glad that you have a doctor who cares and a diagnosis. Keeping everything crossed for an easy treatment.

Kim said...

I think it's fantastic news, I so get it!!!! Sometimes the diagnosis is worth the trade-off just to have our sanity back! I am praying the'res no tumor and you will be back to your healthy self in no time!!! Oh the possibilities!

Amber said...

What a relief! I'm so glad you finally have a good doctor. What a difference that makes. Fingers crossed for you!!

suchagoodegg said...

Totally understand how this diagnosis is a relief. And thank the lord for clear scan, I hope you are celebrating tonight!! :) Thinking of you Katie, xoxo.

S said...

I completely understand how having an answer is comforting.

A cousin of mine had a prolactinoma. She underwent surgery to have it removed and has been fine since.

Josey said...

Wow - WONDERFUL news to have a diagnosis!!

Emily said...

I'm so very happy that you finally have an answer. Hoping that everything from here on out is smooth sailing for you.

Baby Hopes said...

I completely understand you on finally having a diagnosis, especially if it's treatable. Wishing you the very best!

amiracle4us said...

That is wonderful!!! Hoping the MRI goes well and things even out for ya :)

Kandid Kelli said...

Thats great news Katie!

My mom has a tumor on her pituitary gland, but hers is inoperable. Hers was found about 2 years ago and she is being closely monitored by a neurosurgeon (hes also in Tampa).

I hope that you don't have a tumor- but I am glad that you possibly have an answer!

xo
-K

Secret Sloper said...

This *is* good news. Diagnosis means treatment means possibility of fixing (or at least managing) the problem and no more pain. I could kiss RE #3 for you :)

Arlyne said...

So glad that you finally have a Dr. who cares!!! Fingers crossed that it's not a tumor & that you can finally get some relief! xoxo

Jen said...

I think it's good news too. Anything to make it all make just a little more sense is good news :)

Jen Has A Pen said...

My IF is related to my prolactinoma. If you ever have any questions, please feel free to ask! I've had mine for 11 years so I'm an old pro! :-)

Honeybee said...

yay, that's great that you finally have a diagnosis and can now move forward! :)

It Is What It Is said...

That is a whole lot of good news. Now you can make a plan and I hope things unfold in the best possible way.

Tammy said...

Oh wow, I am so relieved to hear you have a diagnosis. This doctor sounds great. Great news, Katie!

Melissa G said...

I can only imagine what a relief it is to receive some concrete information. So happy, that you're happy.

Hugs.

Kelly said...

You're right, Katie. Good, good news. I'm so glad that you found this doctor.

Jessica said...

I'm glad you are FINALLY getting answers. Yay..something to celebrate.

serenity said...

FINALLY a diagnosis. Whew.

Fingers crossed for easy treatment, no tumor, and no more hormones.

xoxo

unaffected said...

It's such a weird feeling to be happy that something is wrong with you, isn't it? I completely understand, and I'm happy for you as well! It sounds like your doctor is great.

someday-soon said...

Finally some news on a treatment! Hope they can get your thyroid under control soon and your u/s comes out clean on Friday {{{HUGS}}}

Glass Case of Emotion said...

Good news (in an odd way, but I totally get it!) I am hoping you find relief soon...

Marla said...

Officially doing a *herkie* for you and your diagnosis. Can you picture it? *herkie*

erika said...

I am so glad you finally got an answer! RE#3 rocks!!!
I will keep my fingers crossed for good MRI results. They all say 'tumor', but remember, it's really just a benign thing. And prolactin levels are super easy to adjust with the pills. I am excited for you.
Here is to a great new chapter in your story!

My So-Called (TTC) Life said...

I absolutely love to hear the hope in your voice in this opst. It IS good news! Esp even more so b/c you're so happy with the news, too. xoxo

~C~ said...

I'm so happy to hear you FINALLY have a diagnosis. I hope the brain tumor check comes out clean.

Sushigirl said...

I can sort of relate to bad news being helpful - I remember the relief when my last tube was taken out. I hope you get the results you want, and well done for persevering so far.

Carli said...

Congratulations! I know that finally having a diagnosis is bound to take a huge weight off of your shoulders!!

Kakunaa said...

Regarding the yard...I did very little, LOL. Our roomie and a neighbor and Hubby did the hard stuff. I did the "garden" and flowers, usually in a hell of a hurry when P was taking naps. It took us forever because of the non-stop rain this Spring! Thanks for the kudos, though!

And I am so glad you have a diagnosis!

Three Cats and a Baby said...

Ah, yes, having an answer is good. I'm so happy you are FINALLY getting answers.

I am going to keep my fingers crossed for an answer with an easy fix. <3

Mrs. Lemon said...

I think this is fabulous news! My college room ate had this and after a year of repeat losses they were able to put her on mess and she conceived and delivered two healthy babies! Good good thoughts coming your way!

marriage20 said...

I'm so happy that you're finally making progress towards feeling better!! I hope the solution is simple and that you find some relief soon!

Brave IVF Girl said...

Completely understand the satisfaction that comes with a diagnosis. Hopefully this is the source and dealing with it will smooth your path going forward. FX!

foxy said...

It must feel so good to have a diagnosis! Knowing can be so much better than not knowing. Especially when there are good treatment options available.

on the other hand, I can't believe that no one checked your prolactin levels until now. Thank god for this new doctor!

I took a medication for a while to lower my prolactin levels. They were just over the normal limit and my RE wanted them down. The meds worked really well.

So happy to hear that you have a plan of action moving forward!

Browniris said...

I am so glad that you were able to get a diagnosis and some much needed answers!

Sherrie Elise said...

knowledge is good! If it does turn out that you have a prolactinoma, don't stress. They are more common than you might think. My grandma had one that was never found until she passed away (not the cause) - she was asymptomatic because of where it was in the pituitary glad. I on the other hand have it in a spot where I have totally whacked out cycles ... that is, if i cycle at all. Bromocryptine helped to level me out but killed my stomach. If you end up with stomach pains from the meds, you might want to consider asking about cabergoline. It requires fewer doses per week and isn't nearly as rough. Best wishes in your treatment and normalizing.