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Thank you for all of your support over the years! xo

Thursday, March 17, 2011

a breakthrough

I had my post-op appointment yesterday. It was scheduled for 10:45, but we ended up waiting almost an hour and a half to see the doctor. By the time he walked in the room, I was annoyed. I was missing time from work, I was hungry, and sitting up on an exam table for that amount of time with nothing to support my back were all combining to turn me into the ultimate "Katie Cranky Pants" (as Joey likes to call it).

But, surprisingly, the wait was worth it.

Let me remind those of you who forgot or those of you who don't know: this was only my second visit to this doctor's office. The first one didn't go so well and days later I found out that this person would be CUTTING ME OPEN to try and remove the large cyst before it completely swallowed my ovary. And while my time spend speaking with this doctor on the day of the surgery was extensive, I still wasn't necessarily convinced that this guy would say anything new or groundbreaking.

He did. He actually attempted to diagnose what's going on. FINALLY! After seeing nearly half a dozen doctors in just three years, I have an explanation for why my left ovary makes cysts every month.

They are all follicular cysts. None of them are endometriomas.

Almost all women get follicular cysts. They are the kind that bench you for a cycle or two - just long enough to piss you off and make you go crazy for taking a break in treatment. It's common, and it occurs when your dominant follicle fails to release an egg. Instead, it keeps growing larger and large until:

- your doctor gives you birth control to shrink it
- it ruptures
- you need surgery
- it simply resolves on its own

No big deal, right? Only my left ovary does it all. of. the. time. Sweet!

So, what does this mean? It means that I need that ovary to completely shut down/stop making follicles in order for this to stop happening. The decision to place me on birth control was a good start, but it wasn't enough. The pill I'm currently taking isn't strong enough to suppress my ovaries. This leaves us with three options:

1. Take two extra progesterone-only pills a day (total of 3) to help further suppress.
2. If option 1 fails, a monthly shot of Depo-Provera instead of the recommended "every three months" dose. They can special order a subcutaneous version of this that I can give to myself at home.

And if neither of those work and we end up needing more surgery? Good-bye, lefty. He's already said he doesn't want me having a lap every year, and I certainly don't want one every year.

I feel good about the plan. It's not the most ideal situation, but I'm comfortable knowing there are back-up plans in case this fails. I also feel like this doctor cares. When I asked him if he wanted to see my back, he replied that not only did he want to see me back, but he wanted me to call the minute something changed or didn't get better. He said, "I don't want you to come in after three months and still be in pain. Because then I'm going to ask you why you didn't call me and come in sooner." He also told us, semi-jokingly, that the reason why he wasn't driving a Porsche is because he wasn't an RE and wasn't interested in making money. His ultimate goal is to make the pain stop.

We share the same goal.

41 comments:

JC said...

Yay! I like this Dr! Finally you have some answers and a plan!!! =)

Alex said...

This sounds great - love this doc!!!

Glass Case of Emotion said...

YAY! Great news someone actually wants to help you feel better. That shouldn't be weird with a doc?

waiting and wishing said...

Nice! I am so glad that it went well!

suchagoodegg said...

Thank the LORD for a wonderful doctor amidst all you have been through, Katie. He sounds like a super star. I am so so so hoping the new protocol will be the END of your cysties. I love this doc and his plan!! xoxo

DeterminedDory said...

Wow, he sounds really cool! Awesome!

Another Dreamer said...

Sounds like a great doc. So glad you have a plan, and I hope it works!

It is what it is said...

My right ovary does the same thing (in fact I have a cyst now). So far I've been able to avoid surgery by having it aspirated, but I never considered (or no one discussed with me) the need to fully suppress to prevent it. We discussed BCPs and I have some here, but it's always been a temporary fix to a temporary problem, not in terms of their recurrence.

Thanks for this post.

Wade's World said...

I'm so glad that you got some answers and like the doctor!

kkasun said...

Wow, he sounds great! It's always nice to have a plan and a diagnosis!!!

kayee said...

Glad you found a doc who is on your side. I hope his treatment works!!

Jessica said...

So glad you are getting some answers and have a plan!!!

someday-soon said...

I'm so happy you found this doctor! The plan sounds good, I hope the pain stops SOON.

Rebecca said...

Sounds AWESOME and sounds like a great plan in place!! I'm so glad to hear it!!!

Erin said...

What a relief to finally get some answers! I am liking this guy already.

missohkay said...

Finally! I'm so glad you found someone who gave you the time of day...

Molly said...

That sounds like what I had with righty before they took it out because it went into torsion and committed "suicide" (at least that is how I think of it).

I am so glad you found a doctor who actually cares and realizes being in pain is not a natural state of being!!! I am also happy he has a plan of attack for you and I have my fingers crossed it goes perfectly.

Brave IVF Girl said...

So glad someone figured it out and is onboard to work with you until things are fixed.

Josey said...

How wonderful to finally have a diagnosis!!

Secret Sloper said...

Finally, finally, finally!!! I am so relieved that you found a non-Porsche driving doctor who actually gives a crap! It sounds like this is the beginning of relief for you.

AplusB said...

So glad you finally got some answers, Katie!

Kim said...

Oh I love him! So glad you found him Katie. We really dont ask for much do we? Just someone who genuinely cares.

Willow said...

Yes! What a relief to have a doctor with a plan! So glad he listened and offered solutions--finally!

A said...

wow, that is awesome news! well, you know, awesome in the sense that this doc is actually wanting to get to the bottom of your pain!!

bodegabliss said...

My left ovary produces a large (non-polycystic) cyst every single time, too! And up until I found your blog, I honestly thought I was the only one who experienced pain from them every single month. I'm wondering, though, why have you decided on surgery when you did? I'm sure you explain it in past posts and I've just missed it, but I'm curious because I have yet to get to that point (but have thought about it). And they usually burst (OUCH) or go away before I do, anyway. I'm just wondering if I'm missing something, or my doctor isn't telling me something they should. Thoughts?

Marla said...

Your doc is definitely a keeper! Love him! And glad you have some answers, too! :)

manymanymoons said...

So happy that you are getting some answers. Don't you just want to go back to all the doctors who couldn't/wouldn't help you and rub it in their faces! :)

*Jelena* said...

Well, finally. Good to see you getting some answers, and even better that you know you have a backup plan.
Excellent.

AL said...

so, so happy you have diagnosis and a Plan A, B, and C!!! I like this doc!!

rebecca said...

Sounds like an amazing, incredibly reassuring visit! So glad you've finally found a physician who is able to give you concrete answers & solutions. Hope this plan brings pain free days ahead!

Seriously?! said...

Such great news! A breakthrough indeed!

Jen said...

That is an AWESOME comment for a doc to make. I would've swooned! Glad you're in good hands now!

amiracle4us said...

That is the BEST news I heard all day!!! I am so happy you found this doctor that is actually helping you, listening to you and doing something!! Hugs and more hugs!

Carli said...

Oh, Katie! That is such great news!!! I know it must be such a relief to feel like a medical professional FINALLY gets it. I hope that one of the options works for you. And soon.

Adele said...

This is great news. He brought a diagnosis to the table and, more importantly, solutions. And he did it with compassion. Which is what you deserve.

PCOSChick said...

So glad you got some answers & have a plan! I know it feels good to know what you are working with :) xoxo

Kaitake said...

Oh yay! I'm so pleased to hear you finally have some answers, and a doctor who cares! Fantastic! Good luck and best wishes with whichever treatment you choose. :)

Kandid Kelli said...

aw yay!! he sounds like a great Doc!!! Congrats. I hope the plans work and youre not in pain anymore

xo
-K

erika said...

I am sooooo happy to hear taht finally there is a doctor out there, who is THERE FOR YOU! that is exactly what you need to overcome all this ovary trouble. I am happy to hear you feel good about the follow-up, and that there is a good-looking plan for you on track!

Dawn said...

Finally!! I'm so happy your doctor wasn't awful! Yay for so e answers!

~C~ said...

This made me chuckle a bit, because my RE drives a Porsche. At least that's what I deduce from parking lot examinations. I'm sorry this is so frustrating, but I'm so glad that you finally, finally have an answer.